Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

Сlаudiа Саrdinаlе: Неrе’s whаt thе Itаliаn film iсоn lооks likе аt 85

Claudia Cardinale is Italy’s counterpart to France’s Brigitte Bardot. She quickly rose to stardom to almost just as quickly disappear from the scene later on. Now, Claudia Cardinale celebrates her 85th birthday.

The Italian star was originally discovered at a beauty contest held in 1957 by the  Unitalia film company. The “most beautiful Italian woman of Tunis” subsequently won a trip to the Venice Film Festival that was to become a decisive turning point in her life. The sultry young woman was born on April 15, 1938, in Tunis, the capital of Tunisia. Her mother was French, and her father Italian.

In 1958, Cardinale, known as CC, played her first role in “Goha” opposite Omar Sharif before being trained as an actress at the Italian Film Academy in Rome. Her talents as an actress renowned for her dauntless rambunctiousness gained her fame, and her gaze into the camera became legendary.

Famous director Luchino Visconti gave her minor roles in “Rocco and his Brothers” (1960), as well as in the historical drama “The Leopard” (1962) with Alain Delon. As she later recounted in a biographical interview, she rebuffed all of her famous  film partners,   Jean-Paul Belmondo, Marcello Mastroianni, Alain Delon and Burt Lancaster.

Cardinale and Delon (left) in a scene from "Il Gattopardo" by Luchino Visconti.
Claudia Cardinale appeared alongside famous actor Alain Delon in “Il Gattopardo” by Luchino ViscontiImage: AP

A beauty queen turned into a film diva

Cardinale is Italy’s counterpart of Brigitte Bardot. But in contrast to Bardot, Cardinale never appeared nude in a film: “I always thought it was more erotic to leave some room to imagination, hinting at things rather than showing everything,” she told the German magazine Stern in 2014.

CC achieved her breakthrough with her performance in the highly popular  Italo western “Once Upon a Time in the West” (1969). The classical western directed by Sergio Leone and starring Henry Fonda and Charles Bronson was shot in Rome’s Cinecittà studios and in Spain with some scenes set in Utah’s Monument Valley. The film that flopped in the US only acquired cult status in Europe. 

A scene from Fitzcarraldo featuring Cardinale in an old fashioned dress next to actor Klaus Kinski.
Cardinale also starred in the 1982 film “Fitzcarraldo” by Werner HerzogImage: picture-alliance / dpa

CC’s career already saw a downswing in the 1970s. She then turned to television films, especially entertainment films where she showed some talent as a comedian. She got her last main role in a movie in 1971 when she starred opposite her main rival, Brigitte Bardot, in the Italo western comedy “Frenchie King.” 

Spending time in a jungle with Werner Herzog 

Ten years later, CC starred in German director Werner Herzog’s historical film “Fitzcarraldo” (1981). Although Claudia Cardinale had a difficult time enduring the bouts of anger of her eccentric film partner Klaus Kinski, she greatly enjoyed shooting and working with director Werner Herzog: “Being in the middle of the jungle with insects all around me and nothing to eat was one of my most wonderful adventures,” she later stated.

Claudia Cardinale and other heroines of European film

Claudia Cardinale is seen as Italy’s counterpart to France’s Brigitte Bardot. The actress who became a star in the 1950s and 60s now celebrates her 85th birthday.

Claudia Cardinale

She’s the youngest of Italy’s three major female stars. Claudia Cardinale worked with outstanding directors like Luchino Visconti and Federico Fellini. She fascinated audiences with her charming smile and acting skills in westerns, among them “Once Upon a Time in the West” and “The Professionals” (pictured).

Gina Lollobrigida

One of the most highly acclaimed European stars of the 1950s and 60s was Gina Lollobrigida who was born in the East of Rome in 1927. “Lollo” even made it to Hollywood where she was equally showered with praise. In the 1970s, however, she withdrew from showbiz.

Sophia Loren

Another Italian actress, Sophia Loren, who was a few years younger than Lollo, became her fiercest rival. The mutual hatred and jealousy of the two stars was a frequent topic in tabloids. In contrast to Lollobrigida, Sophia Loren continued to perform in movies even as an older woman.

Brigitte Bardot

During the same time, another sexpot rose to stardom in France with movies like “And God Created Woman” and “Love is my Profession.” Brigitte Bardot, the superstar of the Grande Nation, withdrew from film production in the 1970s to devote herself to animal rights causes.

Catherine Deneuve

A decade later, Bardot’s compatriot Catherine Deneuve broke onto the film scene. Deneuve differed much from both Loren and Lollo by playing roles as aloof and myterious women early in her career. Deneueve’s talent as an actress guaranteed her success throughout her life.

Romy Schneider

The two decades between 1960 and 1980 were also the golden era of German-French actress Romy Schneider. Born in Vienna, she made her breakthrough in the German-speaking world as “Sissi” before moving to France. In Paris, she became one of the most charismatic and impressive actresses of European film scene. But in her private life, she was anything but lucky. She died in 1982.

Penélope Cruz

One of the most famous Europen actresses in recent decades is Spanish actress Penélope Cruz. Cruz started her career in her home country before achieving fame in other European countries and, finally, Hollywood. Her performances received a lot of acclaim, especially in films by director Pedro Almodóvar, among them “Volver” (pictured).

Irene Papas

After 1945, actresses from smaller European nations were able to conquer the hearts of audiences across Europe. One of them was Irene Papas who is also renowned as a singer in her home country, Greece. She celebrated her biggest success in “Zorba the Greek” (1964) before also working in other European countries, and in Hollywood.

Tatjana Samoilova

While films from Italy, France, Germany and England dominated the film scene during the postwar era, it should not be forgotten that eastern Europe had much to offer too. One of the biggest female stars of Russian film was certainly Tatjana Samoilova who achieved world fame with the movie “The Cranes are Flying” (1957).

Krystyna Janda

Polish actress Krystyna Janda became known in the 1970s for her performances in films by Polish director Andrzej Wajda. She then performed in international co-productions with stars like Lino Ventura. In her home country, Krystyna Janda is also known as a singer and an an author.

In 1993, CC received a Golden Lion for lifetime achievement at the Venice Film Festival to be followed in 2002 by an “honorary bear” at the Berlinale. The spirited actress performed in more than 100 films.

In 2017, CC once again drew attention at an international film festival. A photo depicting her as a young actress embellished a placard in Cannes where she had often been invited as an honorary guest. On April 15, Claudia Cardinale will turn 80. Happy birthday!

This article was originally published April 15, 2018 and updated.

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