Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
She was frequently beaten by her husband, so she left the house with her kids.
Cara Brookins was left emotionally broken when her second abusive marriage ended. She got well by building her own house, which she did after seeing YouTube videos on how to do it.
The mother of four started looking for a new house in 2007 after being forced to sell the Bryant, Arkansas, home she and her soon-to-be ex shared. At the moment, though, anything the computer programmer analyst could afford was too tiny. Brookins too felt obliged to take action to bring her family back together. She admits, “But I had no idea what that should be.”
Brookins, therefore, came up with the idea to build her own house from the ground up. According to Brookins, 45, “If anyone was in our situation, they wouldn’t do this.” “No one else viewed it this way, and now that I think about it, I understand it sounds crazy.”
One acre of property cost Brookins $20,000, and she obtained a building credit for about $150,000. She then started watching YouTube tutorials to learn how to do things like run a gas line, build a wall, lay a foundation, and install plumbing.
Her children, ages 2 to 17, helped her throughout the nine-month construction of the 3,500-square-foot home. At the time, Drew, who was 15 years old, helped Brookins make the preparations. Jada, who was 11 at the time, transported water from a neighbor’s pond using buckets because there was no running water on the property. She then combined the water with 80-pound sacks of concrete to create the mortar for the foundation.
It felt impossible the entire time, according to Brookins, who worked when the kids were in school. After school, Brookins drove her family to the five-mile-away construction site where she worked late into the night on the new house.
YouTube videos previously were vague and provided numerous solutions to a task. Brookins employed a part-time firefighter with building experience for $25 per hour to help with some of the more challenging tasks. She remembers, “He was a step ahead of us in knowledge.”
On March 31, 2009, Brookins and her kids moved into the five-bedroom home. She gave it the name Inkwell Manor in recognition of her desire to become a writer.
In the years afterwards, Brookins has written numerous middle grade and young adult books. She has also written a biography titled Rise: How a House Built a Family, which will be released on January 24.
Building the house helped Brookins emerge from her depression. We were ashamed that our best option was to construct our own shelter, Brookins adds. “We weren’t really proud of it,” In the end, it proved to be the best thing I could have done for myself.
She says, “You can do anything you set your mind to if I, a 110 pound computer programmer, can build a complete house.” Choose one goal and stay with it. Find the big thing you want to do, move slowly in that direction, and take those who also need healing with you. That has a lot of influence.
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