The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Соасh gоеs virаl оnlinе fоr this оnе асt during kids’ bаskеtbаll gаmе
Teachers are some of the most important people in our community, and yet they are one of the most undervalued.
It takes a special person to dedicate their life to educate others, serve as role models, give advice, and mentor the younger generations.
We often hear about how teachers have gone above and beyond to help others and, more specifically, the children in their care.
One such hero is Jonathan Oliver – a phys-ed teacher at WG Nunn Elementary in Valdosta, Georgia – who was recognized for his kind act towards a kindergartener while coaching a basketball game.
After one of his students came to him for assistance, he was only more than happy to help her.
When one of the kindergarteners on Oliver’s basketball team, Kristen Paulk, asked him to help tie her hair back in a ponytail, the coach sprang into action.
Taking a knee on a basketball to get down to little Kristen’s level, Oliver appeared concentrated as he worked on tying her braids back away from her face. Though, unbeknownst to him, he was being recorded.
In fact, Kandice Anderson, another teacher at the elementary school, filmed the coach’s sweet gesture — eventually posting it on YouTube, where he received heartfelt support from the public.
The title of the viral video read: “When your job goes beyond teaching!”
The footage eventually made its way to Good Morning America, who contacted the 34-year-old dad-of-three for an interview.
“It was sh.ocking to me that it got that much attention because we all do it,” Oliver Good Morning America, adding that he didn’t realize he was being filmed.
“We [teachers] want to make them feel likе they’re at home and that they enjoy being here,” he added. “We try to love on them as much as possible. To me, it was just a ponytail.”
The caring coach told the outlet that Kristen had asked him for help with putting a ponytail in her hair during a basketball game, but that his expertise sadly does not extend beyond that – even though he often helps with styling his daughter’s hair.
“It was a good thing she asked for a ponytail. Anything else, I’d say, ‘You better ask your mom,’” he joked.
Kristen’s mom, Miyah Cleckley, told the outlet that the video really touched her, saying: “I always know that Kristen is in very good hands with him. I thought it was really cute because her father he does their hair a lot. We have five girls and one son so when I’m working he has to pick up the weight of doing their hair.”
This story is just one of many stories about teacher’s going above and beyond for their students. They truly are heroes!
What did you think of this sweet story? Let us know in the comments!
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