Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
25 Years Later They Laugh At Critics Who Said Marriage Wouldn’t Last
There are many people who get married despite the fact that critics may doubt their ability to stay married for the long term. This often happens when we get married quickly or perhaps we are young and people don’t think we are yet responsible enough for the bond.
In 1995, there was a young couple who also were doubted but they ended up getting married and they stayed married for 25 years. They also were the first couple with Down syndrome in the UK to become husband and wife.
These days, we hear about people who have Down syndrome getting married on a regular basis. At that time, however, it was unheard of and it was the first time in the world that a couple with Down syndrome said I do.
Just like any other disability, however, those with Down syndrome have the ability to beat the odds, and certainly, that is what Tommy and Maryanne Pilling did. In fact, they are an inspiration to many who wonder if they have what it takes.
Maryanne was born in 1971. Her mother, Linda Martin, provided her with a loving atmosphere at home and she also had a sister who loved her as well. There were still times, however, when she struggled in life and she was even rejected by her father.
Since she was raised in a loving household, however, she grew up to be a very loving woman. It was easy to see in her lively personality.
Tommy was born in 1958 and was an only child. When he was 12 years old, he became an orphan and he grew up in a care home in Essex. He did have delayed development because of a lack of a support system, and he didn’t care much for his physical appearance.
When the two of them met in 1990, they were working in a kitchen in a training home for disabled individuals. He was 32 and she was 19 at the time.
It was easy to see how Maryanne felt about Tommy because she would absolutely light up when she spoke about him. They shared a number of common interests, such as music, cooking, movies, and doing craftwork.
Tommy also loved Elvis Pressley and the two of them would dance together on a regular basis. He would also let her know how much he loved her, and eventually, the family got accustomed to having him around.
18 months after they started dating, he proposed to her and asked her mother for permission to marry her daughter. The mother didn’t hesitate, she gave her blessings right away.
Other people, however, were not quite so positive about the idea of the two of them getting married. Some said that she wasn’t ready for it and some even asked about their sex life.
Despite the fact that they were criticized openly, they got married in 1995. 250 people came to the wedding, which was a fairytale for them.
They lived together with her family for seven years before moving into their own apartment next door. Her sister also moved along with them.
They have a very strong bond because he listens carefully when she speaks. There is never any type of hidden agenda and they love each other with their whole hearts.
Unfortunately, Tommy was hospitalized in 2020 after he was diagnosed with Alzheimer’s and then got COVID. Due to his declining health, he passed away. That was on January 1, 2021.
When the news was broken to her, she seemed to understand but still was a little confused about the situation. We are just glad that they had almost 30 years together, and they loved each other till the end.
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