Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Shannen Doherty prepares for her death by selling possessions she doesn’t need
Shannen Doherty has recently provided an update on her health journey during an episode of her podcast. The renowned actress, known for her role in “Charmed,” has been battling stage 4 breast cancer since 2019. In the April 1 episode of “Let’s Be Clear,” she candidly discussed her preparations for the possibility of death by letting go of many of her material possessions. Doherty has been cleaning out her storage units to make things easier for her family, especially her mother, in the event of her passing. She emphasized that her current priority is her mother and expressed her desire to minimize the burden on her by reducing the amount of belongings she leaves behind. By donating and selling off her extra possessions, particularly furniture, she aims to alleviate the workload her mother would face. Doherty, who is now 52 years old, wants to ensure that her mother doesn’t have to deal with the challenge of managing four storage units filled with furniture. She also mentioned a recent trip to her Tennessee home where she made the difficult decision to let go of her aspirations of fostering horses on the property.
Upon reflection, Doherty shared her emotional journey of packing up and shedding tears as she grappled with the idea of giving up on a dream. She questioned whether this meant giving up on life itself or simply throwing in the towel. Her mother’s reassurance that she didn’t have to let go of the place gave her the strength to continue. However, upon returning to the property and realizing the extensive repairs needed, she found it easier to release it. Doherty acknowledged that while parting ways with something significant can be heartbreaking, it can also bring a sense of peace and tranquility. She emphasized that the challenging work she’s undertaking now will ultimately benefit her loved ones by facilitating a smoother transition. This process prompted her to contemplate the value of material possessions.
Throughout the process, Doherty has come to the realization that the money she makes from selling some of her belongings can be used in more meaningful ways.
“I have the opportunity to create new memories and share experiences with my loved ones,” she expressed. “I can treat my mom to vacations because I have extra spending money available, without having to dip into my savings that will secure the future of everyone in my life once I’m gone,” she added.
During a recent episode of her podcast on January 29, Doherty mentioned that she was responding positively to a new type of cancer treatment, referring to the results as a “miracle,” although she did not disclose the specific medication she was undergoing.
“After undergoing four treatments without much improvement, everyone suggested I switch, but I decided to persist and see how it goes,” Doherty shared during her conversation with her radiation oncologist, Dr. Amin Mirhadi.
Following the sixth or seventh treatment, significant progress was observed in breaking down the blood-brain barrier. Describing it as a miracle, the actor expressed, “It feels like a miracle to me at this moment. It was like I took a chance and decided to continue.” In 2023, Doherty disclosed that her cancer had metastasized to her brain and bones. Typically, even potent chemotherapy struggles to breach the blood-brain barrier and target brain tumors, as stated by Northwestern Medicine.
Referring to the new treatment’s effectiveness, she mentioned, “It’s like a miracle, maybe God intervened and decided to give me a break.” Doherty emphasized the importance of recognizing miracles that may be right in front of us, rather than searching in the wrong places.
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