In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
An Elderly Woman Is Turned Away from Business Class until a Little Boy’s Photo Slips Out of Her Purse
A poor old woman decided to fly business class to get closer to her son. However, she faced rejection from passengers on board until they discovered her true identity.
Rhea felt self-conscious. The old woman had gotten on the first plane to leave the airport that morning, and she sat in a seat in business class where the well-to-do folks stayed.
As she entered the cabin, nobody spared her a glance, but when she located her seat and sat, eyes turned towards her. The reason was simple; she stood out like a sore thumb.
Where the other men and women present all wore fancy and expensive-looking clothes, Rhea wore her old, broken-in clothes — it was her best, but it looked drab compared to what the others were wearing.
The man next to her had his face completely buried in a newspaper when she sat down, so he did not quickly notice her. When he put down the issue, he looked to his side and winced at her appearance, then he signaled a flight attendant.
“What is this?” he asked, pointing to Rhea.
The flight attendant looked a bit mortified at the man’s tone, but after verifying the woman’s seat number, she faced the man and replied, “This passenger took a seat according to the ticket she paid for.”
The man looked like he would vomit at any minute because of Rhea’s presence, and before he even proceeded to talk, he unfolded a pristine handkerchief and used it to cover his nose. Then he said, “I don’t know what’s on her ticket, but I bought a seat in business class to get away from people like her, now it just feels like I’m in a cheap alley with homeless people.”
The altercation had gotten the attention of many in the cabin, and some seemed to be in support of the man. One plump woman bedecked from her head to her feet in jewelry piped up.
“If I wanted to fly with such riff-raff, I would buy an economy class ticket,” she said, and a murmur of agreement moved through the passengers.
The murmur quickly took on a life of its own and soon led to a squabble the attendant tried to quell, but the rich folks would not hear of it — the woman had to go.
“Can’t you see she doesn’t belong here?” one man said.
“Is this how low this airline has fallen? How can such a person afford the bill?” another asked.
“We want her gone and we want a formal apology for allowing us to come into contact with such filth,” the man beside Rhea said.
He and a few other passengers were on their feet and refused to sit until they got what they wanted. Rhea sat there, listening to them arguing and trampling all over her dignity.
“I’m okay, this too shall pass,” she kept repeating under her breath like a mantra.
Still, she heard how they spoke of her, and it hurt her very deeply that people could be so cruel. Before she knew it, sad tears cascaded down her slightly wrinkled cheeks.
“Perhaps I’ll just leave,” Rhea thought, then started to gather her things with shaky hands.
As she stood up to go, she stumbled, and rather than catch her as instinct should have made him, the man beside her flinched away as if to avoid getting splattered with mud.
Rhea fell to her knees and inadvertently spilled the contents of her purse. She started to collect her things with trembling hands, knowing she was the focus of everyone in the cabin.
An expensively dressed old lady who had been sleeping peacefully until the ruckus woke her got up from her seat and also went down on her knees to help Rhea.
At that, the cabin went silent, and the passengers stared dumbfounded as one of them treated Rhea like a human. The first thing the woman picked up was a passport photograph of a little boy.
“Thank you very much,” Rhea whispered as she collected it from her.
“This is my son,” she said with a teary smile, still on her knees. “He is the pilot of this plane.”
“He must have grown up to become a handsome young man,” the rich old woman said.
“How could I know? I had to give him up for adoption when he was just five because I had no means to take care of him.” As she spoke, tears fell from her eyes, and the cabin remained silent.
“I’ve been looking for him for years but I’ve not been able to find him. Recently, I found out he became a pilot so I started to go from airport to airport looking for him. Today I found him but the only way I could get close to him was by boarding this flight.”
Rhea looked up at the people around, most of whom averted their eyes shamefully, then she continued.
“I’m sorry for making you all feel uncomfortable but I just wanted to be as close to my son as possible which is why I saved up my money to get this chance. The business class is closer to him and I’ve never flown before so I thought it would make a great birthday gift for myself.”
The passengers listened to her story, and by the time she stopped talking, many were crying. Rhea got up eventually and went with the flight attendants, who were hell-bent on introducing her to her son.
“What if he doesn’t want to see me?” she asked, resisting their urging. “What if he hates me for abandoning him?” Before the flight attendant could speak, the man who had been against her sitting beside him beat her to it.
“You had no choice, I believe he will understand that,” he said before quickly diving behind his newspaper again. He was also ashamed. Rhea left with the flight attendant to finally meet her son.
After some time, a man’s voice was heard on the plane. “This is the captain speaking… there is a special person flying on this plane — my mom, and it’s her birthday today.”
Everyone applauded the old lady, and those who had ridiculed her before apologized for their mistake. When the plane landed, the pilot, whose name was Joseph, met up with his mother, and finally, after many years of estrangement, Rhea held her son again.
What did we learn from this story?
Choose to be kind. When the man beside Rhea started to clamor for her to leave the cabin, others joined in, and even though the woman had done nothing, they may have succeeded in making her leave. The only person who did not do what they did was another old woman. She stood up for Rhea even though she could easily have just joined the haughty passengers, and her decision changed everything.
Never give up. Rhea looked for her son for years but could not locate him; however, that did not stop her. She kept looking, and she was ready to do anything to meet him, including saving up her hard-earned money for an expensive business class flight. Her perseverance and sacrifices were rewarded in the end, and she was able to meet him.
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