The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Pittie Mom Can’t Stop Crying For Her Puppies After Being Abandoned At Shelter
When Cinnamon – a red nose Pitbull girl – was dumped at the Charlotte Mecklenburg Animal Care & Control shelter in North Carolina, she was absolutely heartbroken.
She had been abandoned without her babies, and every time anyone stopped to talk to her, tears filled her eyes.
This sad Pitbull mama caught the eyes of one volunteer, who then decided to film a short video of her and post it on Facebook.
Only 48 hours later, the life of Cinnamon completely changed.
Cry Of A Broken Heart
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Sarah Jennings Sleime, normally a volunteer for the Greater Charlotte SPCA, decided one Saturday that she was going to make a spontaneous trip to animal control to check out a couple of dogs for rescue.
She had no idea that one dog in particular was going to break her heart.
“I walked the kennels and a pit bull caught my eye… she was sitting up, kind of slumped-over, almost human-like,” Sleime wrote in her Instagram post.
It was pretty obvious that she recently had puppies and was completely heartbroken since her puppies weren’t there with her.
“[The shelter workers] believe she was confined and used as a breeding machine. She’s obviously had many, many litters,” Sleime told The Dodo.
She then bent over and started to talk to Cinnamon, but each time she did so, Cinnamon’s eyes filled with tears.
“It was the craziest phenomenon,” Sleime said.
In the absence of a foster home, the SPCA was unable to rescue any big dogs, but Sleime knew she had to do something to help this poor dog.
“I snapped some video footage of her “crying” and posted it to Facebook. 48 hours later, that video has been viewed 1 MILLION times and shared by 20k people,” Sleime wrote.
In only a day, Sleime’s inbox was filled with hundreds of messages about Cinnamon and her availability.
So many people wanted to adopt this pretty girl and give her a new life that will not be filled with tears.
Happily Ever After
Sleime’s friend, Meghan Connor Shelton, from Charlotte, North Carolina, was also among the hundreds of people to see Cinnamon’s video.
She told The Dodo:
“I have a special place in my heart for pit bulls. I think they’re a very misunderstood dog and a misunderstood breed. And when I saw her in that video, literally crying in a cage, I cried. My kids cried. I showed my husband, and he said we could go look at her tomorrow.”
The next morning, Shelton’s family was first in line to meet Cinnamon.
The whole family, including the children, were immediately in love with her. “It was love at first sight. She just kind of pulled at our heartstrings,” Shelton said.
They filled out the paperwork, and as soon as Cinnamon – now known as Rosie – was spayed, they brought her home.
The family already had another dog at home – a 3-year-old Pitbull male named Blu.
At first, they weren’t sure if the two would get along, especially since Rosie had suffered a lot in her life, but she surprised everyone.
“It was interesting because you never know how it’s going to go, but they just kind of sat next to each other with tails wagging,” Shelton said.
The two are now the best of friends, and they enjoy each other’s company. It’s like they’ve known each other their whole life.
As Rosie slowly got used to her new home and life, her personality also blossomed. According to the family, one of her most interesting characteristics is that “when she gets excited, she snorts like a pig”.
Rosie’s touching video not only secured her a new home, but it also helped many other dogs at the shelter find their forever home.
“Small acts have a big impact: Not only was this sweet dog, Cinnamon, adopted the next morning, but other families who came to adopt her saved other dogs at the shelter, freeing up kennels for strays and owner surrenders waiting in the back who would have certainly been euthanized as the shelter is full,” Sleime said.
One simple video or a photo can reach millions of people and in a matter of seconds, change someone’s life.
Visit the CMPD Animal Care and Control page, and the Greater Charlotte SPCA’s website for more information about adoptable dogs for an opportunity to save another pup’s life just like Rosie’s was saved.
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