In a small Brazilian town, there resides an extraordinary duo of identical twins named Elis and Eloá. Their story serves as a beacon of resilience and the remarkable power of the human spirit. Afflicted with Hutchinson-Gilford Progeria Syndrome, a rare and fatal genetic disorder causing accelerated aging, these twins confront their adversities with remarkable grace and strength, earning admiration from people worldwide.
Understanding Hutchinson-Gilford Progeria syndrome
HGPS stands as an exceptionally rare disorder, impacting roughly 1 in 20 million newborns globally. Marked by rapid aging from early childhood, individuals with progeria often display growth delays, diminished body fat and hair, prematurely aged skin, joint stiffness, and severe cardiovascular issues. Typically, those with HGPS have an average life expectancy of about 14.5 years, though some may extend into their late teens or early twenties. This syndrome gained public attention through the film The Curious Case of Benjamin Button.
The condition is caused by a mutation in the LMNA gene, which produces the lamin A protein responsible for maintaining the structural integrity of the cell nucleus. The mutation results in the production of an abnormal version of the protein, called progerin, which causes cells to become unstable and die prematurely.
Elis and Eloá’s journey
Elis and Eloá swiftly captured attention because of their distinctive medical condition. Despite the physical hurdles imposed by progeria, their contagious smiles and steadfast optimism have emerged as beacons of hope and inspiration. Guilherme and Elismar, the twins’ parents, have dedicated their lives to offering the utmost care for their daughters, striving to ensure they experience as normal a life as feasible within the confines of their condition.
The family’s path has been far from easy. Their daily life is filled with demanding medical routines, including physiotherapy, aimed at addressing joint stiffness and preserving mobility. Despite these challenges, Elis and Eloá approach each day with remarkable bravery and an unparalleled enthusiasm for life, which is truly remarkable.
A global community of support
Elis and Eloá’s narrative has touched hearts worldwide, sparking a surge of solidarity from individuals and groups committed to promoting awareness about progeria and backing research endeavors. The Progeria Research Foundation, a pivotal entity in this realm, has played a vital role in propelling research forward and furnishing assistance to families grappling with the condition.
Through social media platforms, the twins’ journey is shared with a broad audience, fostering a sense of community and solidarity. Their family’s updates, documenting both the highs and lows of their daily lives, provide invaluable insights into the realities of living with progeria, while also spreading a message of hope and perseverance.
Advances in research and hope for the future
In recent years, there have been remarkable advancements in comprehending and addressing progeria. A notable milestone occurred in 2020 when the U.S. Food and Drug Administration (FDA) granted approval for the first progeria treatment: lonafarnib. This medication has demonstrated efficacy in prolonging the lives of children with progeria by mitigating the accumulation of progerin in cells, thereby decelerating the disease’s advancement.
Though a cure remains elusive, ongoing research presents promising prospects. Scientists are delving into gene-editing methodologies, like CRISPR, as potential means to rectify the genetic mutation at its root. For families such as Elis and Eloá’s, these breakthroughs offer a ray of hope for the future.
And in our other article, we recounted the remarkable story of a girl born without a nose, affectionately dubbed “Voldemort,” who refuses to let her differences define her.
Vera Wang, 74, ‘aging backwards’ in new poolside pics | News
“U r aging backward sis!” said an admirer in the post’s comments section.
One person said, “You can’t be 70,” while another made the joke, “HOW is it possible you look like this?” I must instantly set down this piece of pizza.
A fan posted on Facebook: “YOU ARE THE MOMENT! CLASSIC ELEGANCE, GRACE, BEAUTY, AND COMPOSURE!
Another fan said, “Time bows down to you and stops moving.”
The star of upscale bridal attire recently declared, “I dye my hair, I’m [about to be] 75 years old,” on her Wiser Than Me with Julia Louis-Dreyfus podcast, that she isn’t going to let the greys show in her hair anytime soon.
She said, “I would look like a bad skunk,” according to People.
The 74-year-old designer has created exquisite wedding dresses for A-list clients including Selena Gomez, Kim Kardashian, and Victoria Beckham. The pioneer of the fashion industry, who designed wedding dresses for these celebrities, expressed her desire to see her two daughters, Josephine, 30, and Cecilia, 33, marry.
“I hope I get to attend both weddings before I pass away. She stated on the show, “I really hope I’m still here and strong enough to do everything.
Vera previously disclosed that she never made an effort to keep her young “in a fanatical, obsessive way.”
“I started working in fashion when I was 19 years old. In an interview for BBC 100 Women in 2022, she stated, “Not in front of the camera, behind it.” “I never gave youth any thought, perhaps because I deal with the world’s most attractive ladies on a regular basis. And as a result, I see them more as my muses; perhaps this is a constructive way to deal with aging.
On June 27 of this year, the opulent wedding gown designer will celebrate turning 75. She revealed some personal details in the interview, saying that “work” is a component of her “magic elixir” that gives her a youthful appearance.
“I always said that: vodka cocktail, a lot of sleep, [and] work – work is the magic elixir,” she remarked in an interview with Elle last year. She also disclosed that she stays out of the sun.
Although I’m flattered that people find me to have aged nicely, that was never my intention. I stay out of the sun, drink vodka, and sleep. However, I enjoy working. She declared, “I don’t want to fit into one box.
The mother of two said to People in April that she and her husband are “cake people,” so dessert will undoubtedly be served for their 75th birthday party.
Plans for birthdays are not set in stone. 75 is a lot of strain, she said to the publication.
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