Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My Overbearing New Neighbors Turned My Perfect Lawn Into a Parking Space, I’m Elderly, but My Retaliation Was Merciless
When new neighbors parked their truck on Edna’s beautiful lawn, they thought the elderly widow would just accept it. But Edna, protective of the home she built with her late husband, Harold, was not going to let them take over easily.
Edna had lived in her house for over fifty years, filled with memories of her life with Harold. He had planted the trees and tended to the garden, making their home a cherished place. They raised their two children there, watched them grow, and now, with only memories left, Edna found comfort in every blade of grass. Her son, Tom, often visited, helping with the yard work. He told her she shouldn’t worry about it, but Edna never complained; she didn’t want to burden him.
The house had been quiet since Harold passed, but it was still her sanctuary. That changed when a lively young couple moved in next door. At first, Edna didn’t mind, but everything shifted when she saw their shiny pickup truck parked right on her lawn one morning. Her heart sank as deep tire marks ruined her well-kept grass.
Determined, Edna grabbed her cane and walked outside. The neighbor’s wife, with an arrogant attitude, brushed off her concerns. When Edna insisted they move the truck, the woman dismissed her, saying it didn’t matter since Edna didn’t own a car.
Frustrated but trying to remain polite, Edna returned inside, hoping it would be a one-time incident. But the next day, the truck was back, and this time, the husband answered the door. He grumbled about parking wherever he wanted since Edna lived alone. Hurt and angry, Edna insisted it was her property, but he slammed the door in her face.
That night, Edna resolved to protect her lawn, just as Harold would have wanted. While searching through the garage, she discovered an old canister filled with small, sharp tacks, Harold’s leftover project supplies. An idea formed: if she scattered the tacks on her lawn, the neighbors would be in for a surprise.
Under the cover of darkness, Edna quietly sprinkled the tacks where the truck usually parked, feeling a mix of nerves and determination. The next morning, she heard the unmistakable sound of hissing tires. Peeking out the window, she saw the neighbor staring at his flat tires in disbelief. A smile crept across Edna’s face; her plan had worked.
Soon, there was a furious knock on her door. The angry neighbor accused her of ruining his truck. Edna calmly explained that she had asked him to stop parking on her lawn and that she had every right to protect her property. The neighbor continued to shout threats, but Edna had already called the police. As she stood her ground, the sound of sirens grew closer.
Two officers arrived quickly, and the angry neighbor pointed at Edna, claiming she was responsible. The officer asked Edna for her side of the story, and she explained how she had asked them to stop parking on her lawn. After inspecting the tire marks and tacks, the officer informed the neighbor he was trespassing and would be charged for harassment and property damage.
Defeated, the neighbor slumped away, leaving Edna relieved and victorious. The neighbors kept their distance after that, and the truck never returned to her lawn. While the grass would take time to heal, Edna felt a sense of pride in handling the situation herself.
That afternoon, as she sat on her porch, sipping tea in the soft glow of the setting sun, Edna felt at peace. She had stood up for her home, for her memories with Harold, and it filled her with a deep sense of satisfaction.
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