Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Howie Mandel reveals he’s ‘incredibly medicated,’ admits mental health struggles are ‘absolute hell’
renowned for saying “don’t touch me” a lot.When Howie Mandel gave Reba McEntire a firm hug on The Voice stage in September 2023, it stunned everyone.
The comedian caved in to his excitement and was unable to resist the country music star’s allure because he suffers from a crippling phobia of germs.
Mandel appears upbeat and joyful when he is in the spotlight, but when he is not, he discloses that he is a “scared” guy who would rather live “in the fetal position.”
Furthermore, he just made a startling admission that disclosed how he controls the OCD that drives him to “absolute hell.”To find out more, continue reading!
Many people’s inner germaphobe was let loose by the horror of the global epidemic, making them more aware of the risks of contamination.
While many people’s fear of germs passed after a few years, for others it remains crippling and never goes away.
“It is impossible for me to live a day in my life without thinking that we might not survive,” says Howie Mandel, a man who has experienced extreme anxiety and obsessive compulsive disorder (OCD) since he was a little child. The 68-year-old TV personality says the pandemic was particularly upsetting in an interview with People, saying, “But the comfort I would get would be the fact that everybody around me was okay.” It’s a good idea to hold on. However, everything in the world was not well throughout the pandemic. And it was just the worst.
OCD is defined as a “pattern of unwanted thoughts and fears known as obsessions” by the Mayo Clinic. These obsessions cause you to engage in compulsive activities, or repeating actions. These compulsions and obsessions are very distressing and interfere with day-to-day tasks.
“I’m in a bad dream,” declares the comedian who was born in Canada. “I attempt to ground myself. Mandel remarks, “I have a great family, including my wife Terry and their three children, Riley, Jackie, and Alex, who were married in 1980. “I adore what I do,” However, I can sometimes have periods of deep depression from which I cannot recover.
The best medicine is laughter.
Mandel, who got his big break on the medical drama St. Elsewhere in 1982, says that although every day is difficult, comedy gets him through it.
“I use humor as a coping mechanism. I’m crying if I’m not laughing. I haven’t been transparent enough about how dark and terrible things truly get.
Mandel continues, “I’m most at ease onstage,” adding that he uses humor to fend off the allure of OCD. And it’s not nice when I withdraw inside myself when I have nothing to do.
Mandel consistently finds time for projects, contributing his unmatched sense of humor to all of them. He hosts multiple shows in addition to acting as a judge on the America’s Got Talent (AGT) franchise.
“Very heavily medicated”
He opened up to Kelly Clarkson about his mental health concerns during a conversation they had on her talk show in 2022.
“I have OCD and am neurotic.people believe that because I’m out and about, I’m having fun and enjoying myself.I’m terrified. He said to the host, “I like to go home and just live in the fetal position.”
Clarkson retorted, “It’s so funny to me, because every time I’m around you, even seeing you out of work…you’re so the opposite of what I would think,” looking surprised by Mandel’s shadow persona.
Mandel chuckled, “I know, I’m such a joy, I’m a light, I’m an energy, and I’m stunning.” “..To be really honest, I take a lot of medication.
embracing Reba
He may have been excited to see Reba McEntire on The Voice because of that medicine.
Mandel, a panelist on the show, leaped from the audience and called her name. He then hurried up to the country music expert and said, “We’re right next door shooting the AGT finale.” Could you please sign my shirt?
After McEntire signed his “I [heart] Reba” shirt, Mandel gave an unexpected, tight hug to the audience.
Carson Daly, the show’s host, remarked of the man who usually avoids physical contact, “You don’t see that every day.”
Mandel acknowledges his perplexing actions, saying, “People notice discrepancies, particularly in the media.” “He shook someone’s hand,” or “Oh, he hugged someone.” I’m able to give you a handshake. Then I would believe that I hadn’t cleaned it thoroughly. And I would spend hours washing my hands by going back and forth in a circle.
He goes on, “I understand the funny in that,” determined to continue the discourse about mental health. But that doesn’t lessen how excruciatingly awful it is. I also don’t want to justify my emotional well-being. All I want is to keep it going.
Since Mandel was “boosted” and “vaccinated,” his Covid-19 was mild in 2022, serving as a reminder that being afraid of illness is insufficient to keep you safe.
How do you feel about Howie Mandel’s candor regarding his mental health? Kindly share this story with us and let us know what you think so we can start a discourse!
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