Spencer Wright, a famous rodeo cowboy, lost his young son Levi Wright.The three-year-old boy died after a near-drowning accident caused a traumatic brain injury.Spencer Wright, a famous rodeo cowboy, lost his young son Levi Wright.Levi was taken to a hospital in Salt Lake City after he drove a toy tractor into a river near his family’s house by accident.
About a mile downstream, Levi was found unconscious by local police.After being told he was brain dead and not likely to live, the boy started to show signs of improvement.“LEVI AWAKENED!” We don’t know much, but the doctor told me it was okay to be excited about that, and I AM! “My child is really tough!” his mom Kallie Wright wrote on Facebook.MRI results the next day “weren’t good,” which was a shame.“We are broken, but it’s just pictures that show a certain way of life.” “What Levi does over the next few days will really tell us everything,” Kallie said.Family and friends of Levi kept asking for prayers while he fought in the hospital.On June 2, Kallie told me some terrible news“After many sleepless nights, a lot of research, many talks with the best neurologists in the world, and millions of prayers, we are here facing our biggest fear,” she wrote. “Levi only showed us enough to buy us some time.” He did those things to show us that he wanted to stay here, even though the odds were against him. Now we know that he just wanted to give us time to be okay with letting him go.Levi Wright’s family turned off his life support after many tests, scans, and consultations.The next day, Mindy Sue Clark, a family friend, wrote on Facebook that Levi had died.“The last two weeks have been so hard that I can’t even begin to describe them.” The phone rang the night of his accident and I got the message that he had to leave last night. That’s why I don’t want to think about the bad or sad things. It hurts like someone tore my heart out and squished it right in front of me. What I want to talk about is all the miracles we saw during those 12 days.“The most wonderful three-year-old ever.” He was so perfect that we couldn’t keep him. In the last 12 days, this baby boy did a lot. He got a lot of people to get together. A child brought light into a very dark world. His parents could not have asked for a better child.During this very hard time, our thoughts and prayers are with the Wright family.
A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack
Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
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