Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
At 74, Jay Leno Prepares for the Inevitable, Sets Aside Fortune for His Cars — ‘No One Lives Forever
After leaving behind his successful career as the host of late-night talk shows, Jay Leno launched a web series on nbc.com (2015 to 2022) about cars.
Jay Leno’s Garage, now appearing to more than 3.7 million subscribers on YouTube, allows the comedian to share his passion for cars and bikes with his audience.
In November 2022, the former Tonight Show host was badly burned when a fire broke out in his Burbank, California garage.
“I got some serious burns from a gasoline fire.” Leno told Variety at the time “I am OK. Just need a week or two to get back on my feet.”
According to reports, the now 74-year-old man was working under a car when the fire sparked. He suffered third degree burns on his face and got a new left ear after losing his first one to the fire.
Unfortunately, his luck didn’t get any better.
Only two months after the fire, he suffered a broken collarbone, two cracked ribs and two cracked kneecaps in a motorcycle accident.
‘Treats Mavis like gold’
Despite his body breaking down with aging, passion-related accidents and high cholesterol, the one thing that holds strong in his life is his love for Mavis, who he married in 1980.
“I always tell guys when they meet a woman, ‘Marry your conscience. Marry someone who’s the person you wish you could be and it works out okay.” Leno tells People of his enduring love with Mavis, now 77.
After 45 years together, the childless couple started facing some hardships.
Mavis was diagnosed with dementia and her condition is rapidly declining.
In April 2024, Leno was granted a conservatorship over his wife’s estate by a Los Angeles Superior Court judge who ruled the measure was “necessary and appropriate.”
According to court documents obtained by Entertainment Tonight, “Mavis has been progressively losing capacity and orientation to space and time for several years.”
The filing also says and “Jay is fully capable of continuing support for Mavis’ physical and financial needs, as he has throughout their marriage,” but her “current condition renders her incapable of executing the estate plan.”
Included in the documents is a statement from her neurologist Dr. Cohen: “Sometimes [Mavis] does not know her husband, Jay, nor her date of birth.”
Cohen, Mavis’ attending doctor at Cedars Sinai, adds that Leno “loves his wife very much” and “treats [Mavis] like gold.”
‘No one lives forever’
Only months later, In Touch reports that Leno is now preparing for his own death, making end-of-life arrangements so his fortunes are delivered to the rightful beneficiaries.
The filing reads: “No one lives forever, and the actions taken by Mr. Leno are reasonable and necessary for his and Mavis’ protection. Mavis does not object to the petition and in my opinion consents to it. Mr. Leno is her protector, and she trusts him. This estate planning is in her best interest and protects her interests.”
Leno’s latest filing details provisions for Mavis’ care and discloses that the couple intends to stay in their home “for as long as reasonably possible,” using their money for “assistance from household employees or caregivers as may be necessary.”
If Leno dies first, “the estate will divide into the Leno Marital Trust…it will have the Leno Collection and any real property housing Leno Collection. It will be irrevocable, and the survivor receives all income, plus principal for reasonable support. After the survivor’s death, after-tax balance will be distributed, along with the Leno Trust to JDM.”
The Leno Collection is Leno’s collection of automobiles and motorcycles, that’s valued at more than $52 million, and any real property.
Leno also instructed the JDM Foundation, a charity he launched in 1988, to open a museum with his automobile collection, and he’s already named the three initial directors.
In addition, Leno is leaving $7 million to Mavis’ brother Rikki Nicholson, who lives next door, and to his nephew Richard Leno.
The court-appointed official said Leno’s amendments to the trust will likely be approved.
It’s hard to imagine a world without Jay Leno! Please let us know what you think and then share this story so we can send Leno and Mavis a lot of love!
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